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Guidance

General guidance and standards for health and care professionals supporting people with a learning disability and autistic people with their health and care.

Guidance

  • Acute care toolkit

    Organisation: Royal College of Physicians
    Type: Toolkit and resources
    Date published: Various
    Description: The acute care toolkits are a series of resources to help improve the delivery of acute care. The toolkits look at current problems and suggest a range of recommendations for improving quality.

  • Annual Health Checks

    Organisation: NHS England
    Type: Public guidance
    Date published: Jan 2022
    Description: Overview of AHCs - what they are and why they’re important.

  • Diagnosis and management of community acquired pneumonia in people with learning disability

    Organisation: British Thoracic Society
    Type: Guidance
    Date published: https://www.brit-thoracic.org.uk/quality-improvement/clinical-statements/cap-in-people-with-learning-disability/
    Description: Clinical recommendations and pragmatic guidance on the risk assessment, prevention and management of community-acquired pneumonia (CAP) in people with a learning disability.

  • GP Mythbuster: DNACPR

    Organisation: Care Quality Commission (CQC)
    Type: Guidance
    Date published: May 2022
    Description: This mythbuster aims to reduce confusion clarify, signpost and share guidance for providers. It aims help providers manage and maintain effective oversight of DNACPR decisions.

  • Improving Health: Annual Health Checks

    Organisation: NHS England
    Type: Films and Guidance on AHCs
    Date published: June 2022
    Description: Exemplars of AHCs, Films about their importance from people with lived experience, AHCs in secondary care pilot. Published June 2022

  • Increasing the uptake of Annual Health Checks for people with a learning disability: videos for professionals

    Organisation: NHS England
    Type: Films
    Date published: Oct 2021
    Description: Various films for healthcare professionals working in primary care to increase knowledge of AHCs which should include checks on respiratory health, cardiovascular health and help prevent other health concerns.

  • NHS – Support if you are going in to hospital

    Organisation: NHS England
    Type: Guidance
    Date published:
    Description: Information and links to resources about going into hospital to help people with a learning disability as well as families and carers. The information explains the role of learning disability nurses, consent and capacity - and the site includes a video for NHS staff made by people with lived experience, explaining the importance of reasonable adjustments.

  • NHS England: Improving identification of people with a learning disability – guidance for GP practices

    Organisation: NHS England
    Type: Guidance
    Date published: 11th October 2019
    Description: Guidance for general practice explains how GPs should update their registers to make sure eligible patients are flagged for a health check, under the Quality Outcomes Framework (QOF) programme.

  • NICE: Autism Spectrum Disorder in Under 19s

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Guidance
    Date published: Dec 2017
    Description: This guideline covers recognising and diagnosing autism spectrum disorder in children and young people from birth up to 19 years. It also covers referral. It aims to improve the experience of children, young people and those who care for them.

  • NICE: Hearing Loss in Adults

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Guidance
    Date published: June 2018
    Description: This guideline covers some aspects of assessing and managing hearing loss in primary, community and secondary care.

  • NICE: Learning disabilities and behaviour that challenges: service design and delivery

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Guidance
    Date published: March 2018
    Description: This guideline covers services for children, young people and adults with a learning disability (or autism and a learning disability) and behaviour that challenges. It aims to promote a lifelong approach to supporting people and their families and carers, focusing on prevention and early intervention and minimising inpatient admissions.

  • NICE: Learning disability: behaviour that challenges

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Quality Standard
    Date published: July 2019
    Description: Covers care and support and services for children, young people and adults with a learning disability (or a learning disability and autism) and behaviour that challenges, and their families and carers.

  • NICE: Management of patients with a learning disability, autism or both

    Organisation: NICE
    Type: Guidance
    Date published: May 2021
    Description: Clinical guide for front line staff to support the management of patients with a learning disability, autism or both during the COVID-19 pandemic – relevant to all clinical specialities. Includes guidance on DNACPR decisions.

  • Obesity, weight management and people with learning disabilities: Guidance

    Organisation: Public Health England
    Type: Guidance
    Date published: Sept 2020
    Description: This guidance is for public health staff commissioning or running weight management services and other mainstream health professionals working to support people to lose weight.

  • Reasonable Adjustments for people with a learning disability

    Organisation: PHE Resource
    Type: Guidance on the legal duties for clinicians and others on making reasonable adjustments for people with a learning disability under the law.
    Date published: October 2023
    Description: Guidance on the legal duties for clinicians and others on making reasonable adjustments for people with a learning disability under the law.

  • Reasonable Adjustments for people with a learning disability

    Organisation: PHE Resource
    Type: Cancer screening: Making reasonable adjustments
    Date published: October 2024
    Description: Cancer screening: Making reasonable adjustments

  • Reasonable adjustments for people with a learning disability

    Organisation: AHSN Network
    Type: Film
    Date published: Oct 2021
    Description: This video is for healthcare professionals working in primary care, to understand more about reasonable adjustments and how they can support people with a learning disability to attend their annual health check.

  • Stopping over medication of people with a learning disability, autism or both (STOMP)

    Organisation: NHS England
    Type: Professional resources
    Date published: Regularly Updated
    Description: Information and resources including an online mediucal pathway, and easy materials in different languages on STOMP and STAMP

  • The learning disability health check programme (Annual Health Checks/AHCs)

    Organisation: NICE
    Type: Guidance
    Date published: Regularly Updated
    Description: Identification and management of underlying physical health problems at an early stage. Data on how well these health checks are currently delivered are collected by NHS Digital and published as experimental statistics in the Health and Care of People with Learning Disabilities.

  • Use of reasonable adjustments to reduce health inequalities for people with a learning disability

    Organisation: NHS England
    Type: Films and Guidance
    Date published: Jun 2022
    Description: A film about Kareem and his mum Fazilla’s experience of reasonable adjustments and the difference it makes to them when reasonable adjustments are offered.

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