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Guidance

Guidance and standards in end of life care for health and care professionals.

Guidance

  • Conclusions and Recommendations on use of DNACPR from the Care Quality Commission (CQC)

    Organisation: Care Quality Commission (CQC)
    Type: Recommendations
    Date published: May 2022
    Description: Guidance on the importance of ensuring that conversations around advance care planning are carried out with kindness and compassion, in line with best practice and people’s human rights.

  • Delivering high quality end of life care for people who have a learning disability

    Organisation: NHS England
    Type: Guidance
    Date published: August 2017
    Description: This guidance document provide resources and tips for commissioners, service providers and health and social care staff providing, or delivering care to people with a learning disability at the end of their lives.

  • Delivering high quality end of life care for people who have a learning disability – NHS England

    Organisation: NHS England
    Type: Resources
    Date published:
    Description: Resources and tips for commissioners, service providers and health and social care staff including an ambition to view people holistically when providing end of life care. Palliative Care for People with Learning Disabilities Network

  • GP Mythbuster: DNACPR

    Organisation: Care Quality Commission (CQC)
    Type: Guidance
    Date published: May 2022
    Description: This mythbuster aims to reduce confusion clarify, signpost and share guidance for providers. It aims help providers manage and maintain effective oversight of DNACPR decisions.

  • Mental Capacity Act - how it can support people with a learning disability at Annual Health Checks

    Organisation: Academic Health Science Networks
    Type: Film
    Date published: Oct 2021
    Description: This video is for healthcare professionals working in primary care, to understand more about the Mental Capacity Act and how it will assist when conducting an annual health check, for people with a learning disability.

  • NICE Impact: People with a Learning Disability

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Guidance
    Date published: Nov 2021
    Description: General guidance on working with people with a learning disability including the importance of Annual Health Checks which should include a discussion about DNACPR choices and staying well

  • NICE: Care and support of people growing older with learning disabilities

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Guidance
    Date published: April 2018
    Description: This guideline covers care and support for adults with learning disabilities as they grow older. It covers identifying changing needs, planning for the future, and delivering services including health, social care and housing. It aims to support people to access the services they need as they get older.

  • NICE: Management of patients with a learning disability, autism or both

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Guidance
    Date published: May 2021
    Description: Clinical guide for front line staff to support the management of patients with a learning disability, autism or both during the COVID-19 pandemic – relevant to all clinical specialities. Includes guidance on DNACPR decisions.

  • Protect, respect, connect – decisions about living and dying well during COVID-19

    Organisation: Care Quality Commission (CQC)
    Type: Review of DNACPR
    Date published: April 2021
    Description: The CQC's final report on ‘do not attempt cardiopulmonary resuscitation’ decisions during the coronavirus (COVID-19) pandemic.

  • Reasonable Adjustments for people with a learning disability

    Organisation: Public Health England
    Type: Guidance
    Date published: Jan 2020
    Description: Guidance on the legal duties for clinicians and others on making reasonable adjustments for people with a learning disability under the law.

  • Review of Do Not Attempt Cardiopulmonary Resuscitation decisions during the coronavirus (COVID-19) pandemic: our methodology

    Organisation: Care Quality Commission (CQC)
    Type: Public report into DNACPR
    Date published: December 2020
    Description: The CQC's Interim review of Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions taken during the COVID-19 pandemic including links to the interim report published in December 2020 which sets out the progress of the review so far and our expectations around DNACPR.

  • Universal Principles for Advance Care Planning (ACP)

    Organisation: NHS England
    Type: Guidance
    Date published: September 2022
    Description: Six high level principles for advance care planning in England. It is for the person, those important to them, practitioners and organisations involved in supporting advance care planning conversations and honouring their outcomes.

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